#ileostomyawareness Instagram Photos & Videos

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The total number of posts up to now is 4,228 with the ileostomyawareness hashtag.

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Latest #ileostomyawareness Posts

  • -I'm 21 today!- •••
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•••
I went out for the first time in months. Between quarantine and recovery from surgery, I basically stay home with occasional car rides or a walk. But today I got to have a coffee and walk around a local garden! 
Today I'm reflecting that I've made it to 21. There's really no big thing that comes with 21 except now in the States I can legally drink! But this birthday is more than just that for me. I just had surgery a few months ago and I'm feeling amazing! Prior to that I had the worst flare of my life. A few days before surgery I wasn't sure how I'd ever make it.
•••
•••
••• Two and a half months later, I was able to go out today for a few hours. I could eat and drink. I could walk around the gardens. Today I made my first small trip outside my small town without one worry about a bathroom or being sick from some french fries or coffee. And it was the best thing EVER. Swipe to see how hyped I was. •••
•••
•••
Surgery is a scary thing. I was never truly in remission for the entire ten years of ulcerative colitis. Even when I felt "good", I needed to make sure I had constant access to a bathroom. On vacations, I'd have to stay at the Airbnb or hotel bc I was so sick I couldn't get off the toilet. But I also had the best family and bf in the world that always made sure I was taken care of, ran with me to find bathrooms, waited with me while I was sick. So thank you to my wonderful family and boyfriend who have been the absolute best to me during my disease and after surgery.

That all being said, I'm so thankful for my ostomy bag, for the ability to live my life and do ANYTHING I want without any fear. 
#ileostomybag #ileostomy #ileostomyawareness #ileostomylife #ostomy #ostomybag #ostomyawareness #ostomylife #ibdawareness #ibd #ulcerativecolitis 
#ileostomyfashion #ostomyfashion
  • -I'm 21 today!- •••
    •••
    •••
    I went out for the first time in months. Between quarantine and recovery from surgery, I basically stay home with occasional car rides or a walk. But today I got to have a coffee and walk around a local garden!
    Today I'm reflecting that I've made it to 21. There's really no big thing that comes with 21 except now in the States I can legally drink! But this birthday is more than just that for me. I just had surgery a few months ago and I'm feeling amazing! Prior to that I had the worst flare of my life. A few days before surgery I wasn't sure how I'd ever make it.
    •••
    •••
    ••• Two and a half months later, I was able to go out today for a few hours. I could eat and drink. I could walk around the gardens. Today I made my first small trip outside my small town without one worry about a bathroom or being sick from some french fries or coffee. And it was the best thing EVER. Swipe to see how hyped I was. •••
    •••
    •••
    Surgery is a scary thing. I was never truly in remission for the entire ten years of ulcerative colitis. Even when I felt "good", I needed to make sure I had constant access to a bathroom. On vacations, I'd have to stay at the Airbnb or hotel bc I was so sick I couldn't get off the toilet. But I also had the best family and bf in the world that always made sure I was taken care of, ran with me to find bathrooms, waited with me while I was sick. So thank you to my wonderful family and boyfriend who have been the absolute best to me during my disease and after surgery.

    That all being said, I'm so thankful for my ostomy bag, for the ability to live my life and do ANYTHING I want without any fear.
    #ileostomybag #ileostomy #ileostomyawareness #ileostomylife #ostomy #ostomybag #ostomyawareness #ostomylife #ibdawareness #ibd #ulcerativecolitis
    #ileostomyfashion #ostomyfashion

  •  57  16  9 hours ago
  • This PJ top describes my life, all I need is WiFi, food, dogs and my bed 😂😂 ⠀
⠀
What a week it’s been for the world, there’s a lot of pain right now 😞 ⠀
⠀
In the second photo it’ll show you how to access my black lives matter highlight where I’ve shared many posts by other incredible people as well as resources to educate yourself ⠀
⠀
I’ve realised I need to educate myself much more, I’m consistently shocked by stories I hear involving America and people of colour and that’s clearly my white privilege so I will work hard to educate myself in order to support how and where I can. I’ll never understand but I stand 🙏🏼 ⠀
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Another story that’s hurt a community this week is the UK man that a judge has ruled is allowed to die rather than get an ostomy, see my previous post for more thoughts on that ⠀
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I understand why it’s hurt the community but there are facts being spread that are incorrect and that is making this hurt worse ⠀
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This man had an ostomy before, which was reversed, and he hated his ostomy. After his reversal he made an advanced directive to say he didn’t want to ever live with an ostomy again ⠀
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An advanced directive is something written by a person, a solicitor and a doctor to record the wishes of the person in certain medical situations. It’s something that takes time, money and assessments to ensure the person is competent to make that decision. These are generally written weeks, months or years before anything happens to the person ⠀
⠀
The man is going to die without the ostomy and as per his advanced directive that is his wishes, his family fully support him with this. He cannot speak to anyone, including the judge who made the ruling, because he is ventilated in ICU due to being so unwell ⠀
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The medical team asked for a ruling to be made to ensure the advanced directive was valid and lawful before they withdrew life support and allowed him to die which I think was a sensible step by them ⠀
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The media should have never reported this, it’s caused far more pain for his poor family who have been brave enough to respect and support his decision 😞 my thoughts are with them all 💕⠀
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Continued in comments
  • This PJ top describes my life, all I need is WiFi, food, dogs and my bed 😂😂 ⠀

    What a week it’s been for the world, there’s a lot of pain right now 😞 ⠀

    In the second photo it’ll show you how to access my black lives matter highlight where I’ve shared many posts by other incredible people as well as resources to educate yourself ⠀

    I’ve realised I need to educate myself much more, I’m consistently shocked by stories I hear involving America and people of colour and that’s clearly my white privilege so I will work hard to educate myself in order to support how and where I can. I’ll never understand but I stand 🙏🏼 ⠀

    Another story that’s hurt a community this week is the UK man that a judge has ruled is allowed to die rather than get an ostomy, see my previous post for more thoughts on that ⠀

    I understand why it’s hurt the community but there are facts being spread that are incorrect and that is making this hurt worse ⠀

    This man had an ostomy before, which was reversed, and he hated his ostomy. After his reversal he made an advanced directive to say he didn’t want to ever live with an ostomy again ⠀

    An advanced directive is something written by a person, a solicitor and a doctor to record the wishes of the person in certain medical situations. It’s something that takes time, money and assessments to ensure the person is competent to make that decision. These are generally written weeks, months or years before anything happens to the person ⠀

    The man is going to die without the ostomy and as per his advanced directive that is his wishes, his family fully support him with this. He cannot speak to anyone, including the judge who made the ruling, because he is ventilated in ICU due to being so unwell ⠀

    The medical team asked for a ruling to be made to ensure the advanced directive was valid and lawful before they withdrew life support and allowed him to die which I think was a sensible step by them ⠀

    The media should have never reported this, it’s caused far more pain for his poor family who have been brave enough to respect and support his decision 😞 my thoughts are with them all 💕⠀

    Continued in comments

  •  23  2  11 hours ago
  • I’ve been in two minds to delete my last post about the mental health with a ostomy bag.
I’ve spoken to a few regarding my post. Because my anxiety was so bad last night that I shared a private matter, with the public of Instagram. My post is remaining on insta for a while. Because it isn’t all roses and butterflies. 
But we need to be kind to ourselves. 
A stoma is a rollercoaster of highs and lows. 
I have adapted to having my stoma. 
Us has ostomates have to respect the decisions what others ostomates make for themselves.
Each ostomate is completely different and we don’t know the circumstances of this male in Barnsley. 
Ostomates we need to be kind to each other and spread our awareness carefully. 🥰

Outfit of the day:
Also a big shout out for @paperlilydesigns for my be kind t shirt.
Trousers are @Zara last years 
Sandals are @new look old
#bekind #ostomybag #ostomyawareness #ootd #stoma #stomaawareness #whatostomateswear #ostomyfashion #ileostomy #ileostomyawareness #ileostomybag #nocolonstillrollin #barbiebutt #majorsurgery #mentalhealth #mylife #me #endo #ibd #emotions #aniexty
  • I’ve been in two minds to delete my last post about the mental health with a ostomy bag.
    I’ve spoken to a few regarding my post. Because my anxiety was so bad last night that I shared a private matter, with the public of Instagram. My post is remaining on insta for a while. Because it isn’t all roses and butterflies.
    But we need to be kind to ourselves.
    A stoma is a rollercoaster of highs and lows.
    I have adapted to having my stoma.
    Us has ostomates have to respect the decisions what others ostomates make for themselves.
    Each ostomate is completely different and we don’t know the circumstances of this male in Barnsley.
    Ostomates we need to be kind to each other and spread our awareness carefully. 🥰

    Outfit of the day:
    Also a big shout out for @paperlilydesigns for my be kind t shirt.
    Trousers are @Zara last years
    Sandals are @new look old
    #bekind #ostomybag #ostomyawareness #ootd #stoma #stomaawareness #whatostomateswear #ostomyfashion #ileostomy #ileostomyawareness #ileostomybag #nocolonstillrollin #barbiebutt #majorsurgery #mentalhealth #mylife #me #endo #ibd #emotions #aniexty

  •  88  8  19 hours ago
  • I wasnt going to get involved with commenting on this issue that is dominating the social media world of stomas.  However after seeing some of the awful comments from people with a stoma and people without I have decided to comment.  I am not going to put much as I feel @bethanypurnell comment is spot on.  We do not know the full details, people should never judge anyone based on a newspaper article.  Newspapers have dreadful headlines because they want people to react.  And boy have some people reacted and not in a positive way.  I have been very proud of the stoma community over the years but many people with stomas have tainted that for me now.  The world is in crisis with Covid-19,  we should be in times of helping and pulling together, not spouting vile comments.  I think I am done with social media now.

#stoma #crohnsandcolitisuk #ostomy #colostomy #colostomyuk #ibd #ileostomy #ileostomyawareness #colostomybag #mentalhealthawarness #crohns #crohnswarrior #crohnsdisease #ulcerativecolitis #boweldisease #nhs
  • I wasnt going to get involved with commenting on this issue that is dominating the social media world of stomas. However after seeing some of the awful comments from people with a stoma and people without I have decided to comment. I am not going to put much as I feel @bethanypurnell comment is spot on. We do not know the full details, people should never judge anyone based on a newspaper article. Newspapers have dreadful headlines because they want people to react. And boy have some people reacted and not in a positive way. I have been very proud of the stoma community over the years but many people with stomas have tainted that for me now. The world is in crisis with Covid-19, we should be in times of helping and pulling together, not spouting vile comments. I think I am done with social media now.

    #stoma #crohnsandcolitisuk #ostomy #colostomy #colostomyuk #ibd #ileostomy #ileostomyawareness #colostomybag #mentalhealthawarness #crohns #crohnswarrior #crohnsdisease #ulcerativecolitis #boweldisease #nhs

  •  18  1  20 hours ago
  • So there will be two posts today from me 🙈 .
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I shared this to my stories last night on my thoughts about this situation but after seeing many grid posts by other ostomates I felt I needed to share it to mine also .
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I know as an ostomate this is an upsetting story, it feels like the awareness you’re raising just isn’t enough and it feels like the stigma will always be there .
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But we’re all individuals and this man has enforced his right to choose, that’s his right and it doesn’t matter what any of us feel .
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This news story I’m sure barely scrapes the surface, we have no idea what his experience was like the first time he had an ostomy .
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Do I think that if he potentially had more support and counselling the first time he had an ostomy that he would have made a different decision, yes but that’s just a guess and it could have changed nothing .
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So I’m asking please stop judging this young man and his family 🙏🏼 continue spreading awareness, like I will be, do what you can to educate and remove the stigma associated with ostomy’s but remember we all have the right to choose and that deserves as much respect as your choice to live with an ostomy .
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This man is clearly very unwell considering he’s in ICU on a ventilator and if he’s ready to die, as per his advanced directive, then that’s his choice and I respect him for making such a difficult choice
  • So there will be two posts today from me 🙈 .
    .
    I shared this to my stories last night on my thoughts about this situation but after seeing many grid posts by other ostomates I felt I needed to share it to mine also .
    .
    I know as an ostomate this is an upsetting story, it feels like the awareness you’re raising just isn’t enough and it feels like the stigma will always be there .
    .
    But we’re all individuals and this man has enforced his right to choose, that’s his right and it doesn’t matter what any of us feel .
    .
    This news story I’m sure barely scrapes the surface, we have no idea what his experience was like the first time he had an ostomy .
    .
    Do I think that if he potentially had more support and counselling the first time he had an ostomy that he would have made a different decision, yes but that’s just a guess and it could have changed nothing .
    .
    So I’m asking please stop judging this young man and his family 🙏🏼 continue spreading awareness, like I will be, do what you can to educate and remove the stigma associated with ostomy’s but remember we all have the right to choose and that deserves as much respect as your choice to live with an ostomy .
    .
    This man is clearly very unwell considering he’s in ICU on a ventilator and if he’s ready to die, as per his advanced directive, then that’s his choice and I respect him for making such a difficult choice

  •  24  3  22 hours ago
  • Well haven’t done a little self reflection in awhile so here it is. 
I have been settling into the new me pretty well. I am still waiting on my next surgery date but we are hoping it will be sometime this month. I am still working from home as all my doctors felt that would be the best fit for now. But I deeply miss my coworkers! (The little brat I have at home isn’t much help). I’ve dropped quite a bit of weight and still counting 🙌🏼 I’ve had a few big complications but with the help of great technology and even better doctors I’ve been able to manage it from home. Here’s to healing and moving forward! 🤍

Oh and I got a little to much sun this past weekend ☀️ #ileostomy #ileostomyawareness #ileostomybag #ileostomylife #ostomy #ostomyawareness #ostomylife #ostomybag #fistula #fistulaawareness #clevelandclinic #coloplast
  • Well haven’t done a little self reflection in awhile so here it is.
    I have been settling into the new me pretty well. I am still waiting on my next surgery date but we are hoping it will be sometime this month. I am still working from home as all my doctors felt that would be the best fit for now. But I deeply miss my coworkers! (The little brat I have at home isn’t much help). I’ve dropped quite a bit of weight and still counting 🙌🏼 I’ve had a few big complications but with the help of great technology and even better doctors I’ve been able to manage it from home. Here’s to healing and moving forward! 🤍

    Oh and I got a little to much sun this past weekend ☀️ #ileostomy #ileostomyawareness #ileostomybag #ileostomylife #ostomy #ostomyawareness #ostomylife #ostomybag #fistula #fistulaawareness #clevelandclinic #coloplast

  •  61  0  4 June, 2020
  • Hernia risk is something I’ve talked about in posts before and I’ve realised from messages I’ve received that people don’t really understand why this is so hopefully this post helps explain 🙏🏼⠀
⠀
An abdominal hernia (you can get them in other places) is when fatty tissue or an organ manages to push through a weak spot in the abdominal wall ⠀
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Hernias can get extremely big and therefore noticeable, they can cause pain, they can cause constipation and they can cause emergency situations when the hernia is strangulated or it blocks off part of the bowel ⠀
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An ostomy is basically a man made hernia, a surgeon has pulled an organ out through the abdominal wall to create the ostomy ⠀
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So all around the ostomy is a weak point due to there being a literal hole in the muscle, every incision is also a weak point as the muscles were cut there too ⠀
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That’s why having an ostomy puts you at such high risk because essentially you’ve already got a hernia and this can worsen causing many issues.  The medical literature disagree with an exact figure but it’s somewhere in the realm of 80% of people with an ostomy will develop a hernia ⠀
⠀
Unfortunately when you’ve got an ostomy hernia surgery isn’t actually a good plan, it’ll create more weak points and probably result in another hernia 🤦🏻‍♀️ obviously if it becomes an emergency or is massively impacting quality of life then usually surgery will be performed⠀
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This is why ostomates are encouraged to reduce the risk factors as much as possible by staying at a healthy weight, building up the core muscles, avoiding direct abdominal exercises, stop smoking, eating a nutrient rich diet, following hernia precautions for 3-6 months after surgery, pushing on the ostomy when coughing, sneezing or vomiting and wearing hernia prevention support at all times except when resting or sleeping ⠀
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It’s a big risk and a worry in the beginning but that does reduce with time as you see what your body can manage and you get used to following the precautions, for most people it’s an acceptable risk after how much their ostomy has helped them 🙌🏼⠀
⠀
Ostomates, what do you do for hernia prevention ?
  • Hernia risk is something I’ve talked about in posts before and I’ve realised from messages I’ve received that people don’t really understand why this is so hopefully this post helps explain 🙏🏼⠀

    An abdominal hernia (you can get them in other places) is when fatty tissue or an organ manages to push through a weak spot in the abdominal wall ⠀

    Hernias can get extremely big and therefore noticeable, they can cause pain, they can cause constipation and they can cause emergency situations when the hernia is strangulated or it blocks off part of the bowel ⠀

    An ostomy is basically a man made hernia, a surgeon has pulled an organ out through the abdominal wall to create the ostomy ⠀

    So all around the ostomy is a weak point due to there being a literal hole in the muscle, every incision is also a weak point as the muscles were cut there too ⠀

    That’s why having an ostomy puts you at such high risk because essentially you’ve already got a hernia and this can worsen causing many issues. The medical literature disagree with an exact figure but it’s somewhere in the realm of 80% of people with an ostomy will develop a hernia ⠀

    Unfortunately when you’ve got an ostomy hernia surgery isn’t actually a good plan, it’ll create more weak points and probably result in another hernia 🤦🏻‍♀️ obviously if it becomes an emergency or is massively impacting quality of life then usually surgery will be performed⠀

    This is why ostomates are encouraged to reduce the risk factors as much as possible by staying at a healthy weight, building up the core muscles, avoiding direct abdominal exercises, stop smoking, eating a nutrient rich diet, following hernia precautions for 3-6 months after surgery, pushing on the ostomy when coughing, sneezing or vomiting and wearing hernia prevention support at all times except when resting or sleeping ⠀

    It’s a big risk and a worry in the beginning but that does reduce with time as you see what your body can manage and you get used to following the precautions, for most people it’s an acceptable risk after how much their ostomy has helped them 🙌🏼⠀

    Ostomates, what do you do for hernia prevention ?

  •  25  11  3 June, 2020
  • Yes you can!!
.
This is my guiding phrase for my latest project. I am in the process of writing a book of essays depicting my journey with dysmotility and colitis. I’m pouring through all my journals from over the years for inspiration ❤️
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Although it is a big goal, I want to try and publish it someday along with launching my ileostomy lifestyle education blog for my doctorate project.
.
Here’s to changing 2020 and accomplishing big goals ❤️
.
.
.

#ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy #barbiebutt #spoonie #embraceimperfection #warrior #book #futureauthor
  • Yes you can!!
    .
    This is my guiding phrase for my latest project. I am in the process of writing a book of essays depicting my journey with dysmotility and colitis. I’m pouring through all my journals from over the years for inspiration ❤️
    .
    Although it is a big goal, I want to try and publish it someday along with launching my ileostomy lifestyle education blog for my doctorate project.
    .
    Here’s to changing 2020 and accomplishing big goals ❤️
    .
    .
    .

    #ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy #barbiebutt #spoonie #embraceimperfection #warrior #book #futureauthor

  •  21  2  3 June, 2020
  • A right to die?

Now this may be a bit of a marmite opinion for some but I’m going to be open and honest about my feelings towards the news article about a 30 year old man who would rather die than have a permanent stoma.
It took me a long 9 years to get to the point I am at now, sharing my journey, sharing my story with confidence. It’s not easy it never is, and I still have days where I wish things were different because of it but do I regret having my stoma at all... no I don’t. I honestly hand on heart feel saddened that this man feels he can’t live his life anymore because of his stoma, but I can understand why he feels that way. I promote positivity and confidence in my stoma now because I hand on heart cherish the life it has enabled me to have; my job, son, family, home, friends..everything! But I can appreciate this isn’t how Iv always felt.  They say Rome wasn’t built in a day and I damn well agree. Like most things they say things take time. Your mental well being is a major part in recovering from stoma formation surgery and counselling or CBT may be needed. I’m not ashamed to say I had therapy, it’s helped and got me to the place I’m at now. Iv learnt a lot in 9 years about myself but it’s taken 9 long years. I share my journey because I don’t want anyone to feel alone, I don’t want anyone to feel like this man does that he has no other option but to die than to live the life he could have, it saddens me so much I’m crying writing this. If he could see our community and see how we live our lives the way we do, maybe he would have hope because some times a little of that is all you need to start a new way of life💔

#crohnsdisease #ulcerativecolitis #crohnswarrior #ibd #ibdawareness #inflammatoryboweldisease #stoma #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #colostomy #urostomy #noteverydisabilityhasvisability #mentalhealthmatters #mentalhealthrecovery #itsoknottobeok #recoveryispossible #recoveryjourney #chronicallyill #chronicallyfabulous #bagwhatbag #whatostomateswear #lettingitalloutofthebag #nocolonstillrollin #takestime #healingjourney #romewasntbuiltinaday #beliveinyou #ibdcommunity
  • A right to die?

    Now this may be a bit of a marmite opinion for some but I’m going to be open and honest about my feelings towards the news article about a 30 year old man who would rather die than have a permanent stoma.
    It took me a long 9 years to get to the point I am at now, sharing my journey, sharing my story with confidence. It’s not easy it never is, and I still have days where I wish things were different because of it but do I regret having my stoma at all... no I don’t. I honestly hand on heart feel saddened that this man feels he can’t live his life anymore because of his stoma, but I can understand why he feels that way. I promote positivity and confidence in my stoma now because I hand on heart cherish the life it has enabled me to have; my job, son, family, home, friends..everything! But I can appreciate this isn’t how Iv always felt. They say Rome wasn’t built in a day and I damn well agree. Like most things they say things take time. Your mental well being is a major part in recovering from stoma formation surgery and counselling or CBT may be needed. I’m not ashamed to say I had therapy, it’s helped and got me to the place I’m at now. Iv learnt a lot in 9 years about myself but it’s taken 9 long years. I share my journey because I don’t want anyone to feel alone, I don’t want anyone to feel like this man does that he has no other option but to die than to live the life he could have, it saddens me so much I’m crying writing this. If he could see our community and see how we live our lives the way we do, maybe he would have hope because some times a little of that is all you need to start a new way of life💔

    #crohnsdisease #ulcerativecolitis #crohnswarrior #ibd #ibdawareness #inflammatoryboweldisease #stoma #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #colostomy #urostomy #noteverydisabilityhasvisability #mentalhealthmatters #mentalhealthrecovery #itsoknottobeok #recoveryispossible #recoveryjourney #chronicallyill #chronicallyfabulous #bagwhatbag #whatostomateswear #lettingitalloutofthebag #nocolonstillrollin #takestime #healingjourney #romewasntbuiltinaday #beliveinyou #ibdcommunity

  •  153  60  3 June, 2020
  • Sleep eludes me tonight...at 2345 my wound vac started leaking beyond repair. So, I had to pull it off 😟.
.
A painful process but I prefer to take it off myself...for some reason it just hurts less 🤷🏻‍♀️
.
Wound appointment in the morning to put the vac back on. Until then, waiting for my pain meds to kick in for a peaceful vac-free sleep 😴 .
.
.

#ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy #barbiebutt #spoonie #embraceimperfection #warrior #sleep #insomia #painpaingoaway #woundvac #woundvacssuck
  • Sleep eludes me tonight...at 2345 my wound vac started leaking beyond repair. So, I had to pull it off 😟.
    .
    A painful process but I prefer to take it off myself...for some reason it just hurts less 🤷🏻‍♀️
    .
    Wound appointment in the morning to put the vac back on. Until then, waiting for my pain meds to kick in for a peaceful vac-free sleep 😴 .
    .
    .

    #ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy #barbiebutt #spoonie #embraceimperfection #warrior #sleep #insomia #painpaingoaway #woundvac #woundvacssuck

  •  44  9  3 June, 2020
  • I often get asked how I shower with my ileostomy so I thought I’d share a bit about that ⠀
⠀
Truly I just walk into the shower like anyone else does but with my bag still on, I fold it in half so it’s a bit smaller but it stays on ⠀
⠀
Some people shower without their bag on which is meant to feel lovely and is completely safe. However, for me it’s not an option (yet) as as soon as my stoma feels air on him he poos everywhere so I wouldn’t get terribly clean after a shower 😂🙈 ⠀
⠀
The stoma bags are completely waterproof, they’re designed to work in swimming pools and baths so a shower causes them no issues 🙌🏼 ⠀
⠀
However the bag will be a bit wet for a while after, some people use a hair dryer to dry it but that burns my skin so I use a towel like shown in these photos ⠀
⠀
I tuck it into my trousers and then into my bra and that way it doesn’t get my clothes wet while the bag dries which only takes about an hour ⠀
⠀
I hope that tip is useful to anyone who is getting a stoma in the future 💕
  • I often get asked how I shower with my ileostomy so I thought I’d share a bit about that ⠀

    Truly I just walk into the shower like anyone else does but with my bag still on, I fold it in half so it’s a bit smaller but it stays on ⠀

    Some people shower without their bag on which is meant to feel lovely and is completely safe. However, for me it’s not an option (yet) as as soon as my stoma feels air on him he poos everywhere so I wouldn’t get terribly clean after a shower 😂🙈 ⠀

    The stoma bags are completely waterproof, they’re designed to work in swimming pools and baths so a shower causes them no issues 🙌🏼 ⠀

    However the bag will be a bit wet for a while after, some people use a hair dryer to dry it but that burns my skin so I use a towel like shown in these photos ⠀

    I tuck it into my trousers and then into my bra and that way it doesn’t get my clothes wet while the bag dries which only takes about an hour ⠀

    I hope that tip is useful to anyone who is getting a stoma in the future 💕

  •  59  5  2 June, 2020
  • #ootd is a polka dot playsuit from @primark, it’s really comfy and light for this weather. The straps are adjustable and the buttons can open if you need to get it off to use the bathroom. I love the pattern and it’s not too tight round my stoma. Before I had my op I never wore these, but it’s so comfortable, the buttons go down to just beside my bag. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy  #stomalife #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble  #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #bodyconfidence #primark #primarkfashion
  • #ootd is a polka dot playsuit from @primark, it’s really comfy and light for this weather. The straps are adjustable and the buttons can open if you need to get it off to use the bathroom. I love the pattern and it’s not too tight round my stoma. Before I had my op I never wore these, but it’s so comfortable, the buttons go down to just beside my bag. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
    #therealityofacrohnicillness #bodyconfidence #primark #primarkfashion

  •  40  13  1 June, 2020
  • My First Holiday with Madge! ☀️ ✈️ 🏝 🇲🇽 We had a holiday to Mexico booked way before the operation or before I fell ill. As I lay there in hospital, with each day that passed I was certain that we wouldn’t be going. We were going with a group of family and friends and we were all so looking forward to it. We were due to fly on 17th May 2018, this just happened to be exactly 6 weeks after the date of my operation! 
The day after my operation I spoke to the surgeon and asked him what were the chances of me being able to go. To my surprise he said, “It would do you the world of good. You should be ok to go, let’s see how it goes” 2 days later I said to my husband that nothing was going to stop me getting on that plane and for the first time in months I had hope, and boy was I determined. Seeing my husbands face light up as I said that was brilliant, I’ll never forget it. Aiming for that holiday gave me a great focus and I know it aided my recovery massively!

So here I am in Mexico! I couldn’t quite believe it when we boarded the plane! I don’t think I stopped smiling for the whole 10 hour flight 😃. I swam, I couldn’t believe how discreet my bag was under my costume. We swam with dolphins - amazing experience. It was literally just what the doctor ordered and I will always have amazing memories of the holiday that helped me get better 🥰 
#stoma #justwhatthedoctorordered #mexico #holiday #stomalife #bagwhatbag #ileostomy #ileostomylife #ileostomybag #ileostomyawareness #invisibledisability #bagforlife #mystomastory #nocolonstillrollin #ibd #ibdawareness #lifetakesguts #stomastory #ulcerativecolitis
  • My First Holiday with Madge! ☀️ ✈️ 🏝 🇲🇽 We had a holiday to Mexico booked way before the operation or before I fell ill. As I lay there in hospital, with each day that passed I was certain that we wouldn’t be going. We were going with a group of family and friends and we were all so looking forward to it. We were due to fly on 17th May 2018, this just happened to be exactly 6 weeks after the date of my operation!
    The day after my operation I spoke to the surgeon and asked him what were the chances of me being able to go. To my surprise he said, “It would do you the world of good. You should be ok to go, let’s see how it goes” 2 days later I said to my husband that nothing was going to stop me getting on that plane and for the first time in months I had hope, and boy was I determined. Seeing my husbands face light up as I said that was brilliant, I’ll never forget it. Aiming for that holiday gave me a great focus and I know it aided my recovery massively!

    So here I am in Mexico! I couldn’t quite believe it when we boarded the plane! I don’t think I stopped smiling for the whole 10 hour flight 😃. I swam, I couldn’t believe how discreet my bag was under my costume. We swam with dolphins - amazing experience. It was literally just what the doctor ordered and I will always have amazing memories of the holiday that helped me get better 🥰
    #stoma #justwhatthedoctorordered #mexico #holiday #stomalife #bagwhatbag #ileostomy #ileostomylife #ileostomybag #ileostomyawareness #invisibledisability #bagforlife #mystomastory #nocolonstillrollin #ibd #ibdawareness #lifetakesguts #stomastory #ulcerativecolitis

  •  16  8  1 June, 2020
  •  3  1  1 June, 2020
  • The Operation.... This is me in intensive care the day after my operation. Morphine was my best friend that day! 
April 5th 2018 was the day. I had no idea what time I would go down to theatre although I knew unless any emergencies came in it would be quite early as it was quite a big operation. Chris was with me as we waited. We made small talk and just talked about anything and everything other than what was about to happen. They came for me about 10am. Chris walked as far as he could with me. I was so frightened to say goodbye, I was so scared I wouldn’t wake up. The night before when Charlie has been to see me. I couldn’t stop kissing and hugging him and telling him I loved him. I know it sounds stupid but i was really so scared of not waking up! 
I had the operation. I had 90% of my large bowel removed and Madge was ‘born’. I woke up and the first thing I said was ‘I’m alive, thank you’ the second thing I said was ‘OUCH!’ #stoma #stomalife #ibdawareness #ibdawareness #bagforlife #nocolonstillrollin #ileostomybag #ileostomy #ileostomyawareness #mystoma #mystomastory #pancolitis #ulcerativecolitis #invisibleillness #colonsurgery #surgeryrecovery
  • The Operation.... This is me in intensive care the day after my operation. Morphine was my best friend that day!
    April 5th 2018 was the day. I had no idea what time I would go down to theatre although I knew unless any emergencies came in it would be quite early as it was quite a big operation. Chris was with me as we waited. We made small talk and just talked about anything and everything other than what was about to happen. They came for me about 10am. Chris walked as far as he could with me. I was so frightened to say goodbye, I was so scared I wouldn’t wake up. The night before when Charlie has been to see me. I couldn’t stop kissing and hugging him and telling him I loved him. I know it sounds stupid but i was really so scared of not waking up!
    I had the operation. I had 90% of my large bowel removed and Madge was ‘born’. I woke up and the first thing I said was ‘I’m alive, thank you’ the second thing I said was ‘OUCH!’ #stoma #stomalife #ibdawareness #ibdawareness #bagforlife #nocolonstillrollin #ileostomybag #ileostomy #ileostomyawareness #mystoma #mystomastory #pancolitis #ulcerativecolitis #invisibleillness #colonsurgery #surgeryrecovery

  •  10  2  31 May, 2020
  • First time swimming with a bag! No problem at all! A lot of people wonder if they can do stuff like this after surgery. Although swimming a lap definitely kicked my butt since I haven't really worked out much since surgery but you can totally get in a bath, swim, go to the beach! You don't even have to do anything special to the bag- the bag is waterproof! I put on my swimsuit that I used to wear prior to surgery and bam, same as before! An ostomy bag does not limit you! 
#ileostomybag #ileostomy #ileostomyawareness #ileostomylife #ostomy #ostomybag #ostomyawareness #ostomylife #ibdawareness #ibd #ulcerativecolitis
  • First time swimming with a bag! No problem at all! A lot of people wonder if they can do stuff like this after surgery. Although swimming a lap definitely kicked my butt since I haven't really worked out much since surgery but you can totally get in a bath, swim, go to the beach! You don't even have to do anything special to the bag- the bag is waterproof! I put on my swimsuit that I used to wear prior to surgery and bam, same as before! An ostomy bag does not limit you!
    #ileostomybag #ileostomy #ileostomyawareness #ileostomylife #ostomy #ostomybag #ostomyawareness #ostomylife #ibdawareness #ibd #ulcerativecolitis

  •  84  13  31 May, 2020
  • Summer looks different this year, but you don’t have to lose the fun. Practice social distancing while out and about and don’t forget the sunscreen! And if you’re worried about your bikini body, don’t be. Every body is a bikini body, no matter what🌞
#ostomy #ostomate #ileostomy #stoma #ostomyawareness #ostomylife #health #ostomybag #ostomyfashion #bikini #bathingsuit #bikinibod #selflove #sunscreen #selfacceptance #selfcare #cancerfree #everybodyisbeatiful #selflove #colorectalcancer #cancersurvivor #colorectalcancerawareness #summer #ileostomyawareness #lifeaftercancer #lifeafter50 #summervibes #ostomyfashion #ostomyinspo #ostomygirl #getyourbellyout
  • Summer looks different this year, but you don’t have to lose the fun. Practice social distancing while out and about and don’t forget the sunscreen! And if you’re worried about your bikini body, don’t be. Every body is a bikini body, no matter what🌞
    #ostomy #ostomate #ileostomy #stoma #ostomyawareness #ostomylife #health #ostomybag #ostomyfashion #bikini #bathingsuit #bikinibod #selflove #sunscreen #selfacceptance #selfcare #cancerfree #everybodyisbeatiful #selflove #colorectalcancer #cancersurvivor #colorectalcancerawareness #summer #ileostomyawareness #lifeaftercancer #lifeafter50 #summervibes #ostomyfashion #ostomyinspo #ostomygirl #getyourbellyout

  •  27  0  31 May, 2020
  • Enjoying the gorgeous sun, swimsuit is last years stock from @debenhams, i love the little skirt at the bottom and the ruffles round the waist. The straps are detachable so can wear it how you like. The pattern is cute and disguises any bloating. Last year when I wore it I was a lot bigger then I am now and I feel better in it then I did then. I know that sounds weird, but last year being on pred I didn’t like my body. But a year on I’m feeling more me again . I have the sun, cocktails, swim suit, All I’m missing now is a pool or a hot tub 😂😂 👙🍹☀️🕶#crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy  #stomalife #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble  #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #bodyconfidence
  • Enjoying the gorgeous sun, swimsuit is last years stock from @debenhams, i love the little skirt at the bottom and the ruffles round the waist. The straps are detachable so can wear it how you like. The pattern is cute and disguises any bloating. Last year when I wore it I was a lot bigger then I am now and I feel better in it then I did then. I know that sounds weird, but last year being on pred I didn’t like my body. But a year on I’m feeling more me again . I have the sun, cocktails, swim suit, All I’m missing now is a pool or a hot tub 😂😂 👙🍹☀️🕶 #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
    #therealityofacrohnicillness #bodyconfidence

  •  45  10  31 May, 2020
  • It’s time to operate.... We’ve tried everything we can.... I came out of hospital again on the Thursday before Good Friday, deep down I knew I shouldn’t be, but I didn’t tell the consultants and nurses that. I was desperate to spend Easter with my Husband, Chris, My son Charlie (5) & the rest of my Family. I felt awful for those 4 days over Easter. Completely dreadful, scared and frightened. I knew this fight was far from over. The day after the Easter break I was back in hospital. My consultant said the words “we’ve tried everything, there is nothing else we can try, surgery is now the only option”. In that moment, although deep down I knew he was going to say that, my world froze. I sobbed, and sobbed and sobbed. My mum and my Charlie were with me. Charlie was only 5, it was the school holidays, I hated being upset in front of him, but he was oblivious really, he was just happy he got to play games on my phone to keep him distracted! My mum comforted me, I could tell she was scared too, but as always was my rock. Chris came straight to the hospital after work and was amazing, supportive, loving and said all the right things. “We’ll get through this, everything is going to be  ok”

Laying there in hospital that night was very surreal, but weirdly although I was so scared I found a strength inside me. I felt some relief, this would mean that the pain was going to stop, this could be over. I just wouldn’t need to go to the toilet around 40 times a day. I could be free from this awful disease. Yes I’ll have a stoma but really can it be any worse than the nightmare I was living? #stoma #mystomastory #stomastory #ibdawareness #ibd #invisibleillness #ileostomy #ileostomybag #ileostomyawareness #lifetakesguts #bagforlife #inflammatoryboweldisease #timetooperate #surgerytime #ulcerativecolitis #uc #ostomyawareness
  • It’s time to operate.... We’ve tried everything we can.... I came out of hospital again on the Thursday before Good Friday, deep down I knew I shouldn’t be, but I didn’t tell the consultants and nurses that. I was desperate to spend Easter with my Husband, Chris, My son Charlie (5) & the rest of my Family. I felt awful for those 4 days over Easter. Completely dreadful, scared and frightened. I knew this fight was far from over. The day after the Easter break I was back in hospital. My consultant said the words “we’ve tried everything, there is nothing else we can try, surgery is now the only option”. In that moment, although deep down I knew he was going to say that, my world froze. I sobbed, and sobbed and sobbed. My mum and my Charlie were with me. Charlie was only 5, it was the school holidays, I hated being upset in front of him, but he was oblivious really, he was just happy he got to play games on my phone to keep him distracted! My mum comforted me, I could tell she was scared too, but as always was my rock. Chris came straight to the hospital after work and was amazing, supportive, loving and said all the right things. “We’ll get through this, everything is going to be ok”

    Laying there in hospital that night was very surreal, but weirdly although I was so scared I found a strength inside me. I felt some relief, this would mean that the pain was going to stop, this could be over. I just wouldn’t need to go to the toilet around 40 times a day. I could be free from this awful disease. Yes I’ll have a stoma but really can it be any worse than the nightmare I was living? #stoma #mystomastory #stomastory #ibdawareness #ibd #invisibleillness #ileostomy #ileostomybag #ileostomyawareness #lifetakesguts #bagforlife #inflammatoryboweldisease #timetooperate #surgerytime #ulcerativecolitis #uc #ostomyawareness

  •  8  3  31 May, 2020
  • I bought this dress from @newlook last week and I’m in love with it. It’s so comfy and soft, very light for the warm weather we’re having. It’s perfect for my stoma as it doesn’t cling to my stomach, it’s got an elastic waistband too. I love the colour, the flowers on it and the sleeve detail too. I can wear it In the winter also with black tights, ankle boots and a cardigan. This is true to size, I got a 12 and it’s perfect round the bust area too. My chest is big, so the buttons don’t gap in the middle like some dresses do on me. I seen the lovely @ems_stomalife wearing it just after I bought it too. It’s my perfect summer dress. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy  #stomalife #IBDsuperheroes  #endthestigma #sickbutinvisble  #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #bodyconfidence #floraldress #thisisnewlook #lockdownlooks #summerclothes #newlook
  • I bought this dress from @newlook last week and I’m in love with it. It’s so comfy and soft, very light for the warm weather we’re having. It’s perfect for my stoma as it doesn’t cling to my stomach, it’s got an elastic waistband too. I love the colour, the flowers on it and the sleeve detail too. I can wear it In the winter also with black tights, ankle boots and a cardigan. This is true to size, I got a 12 and it’s perfect round the bust area too. My chest is big, so the buttons don’t gap in the middle like some dresses do on me. I seen the lovely @ems_stomalife wearing it just after I bought it too. It’s my perfect summer dress. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #IBDsuperheroes #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
    #therealityofacrohnicillness #bodyconfidence #floraldress #thisisnewlook #lockdownlooks #summerclothes #newlook

  •  58  6  31 May, 2020
  • Firstly - it’s the last day of May!!! How did that happen? It’s gone so fast but boy what a first 1/2 of the year the world has had!! It’s also #ehlersdanlosawareness month and this is the last day of the month. I had plans of doing fancy post and awesome examples etc but my body had other ideas. So here I am at Auckland hospital again. Ehlers danlos or Eds for short can be a devastating disorder. It’s in very basic terms a collagen disorder. It’s where the integrity of your collagen is affected and in terms that pretty much affects you whole entire body. There are more than several different types but today I’m just going to talk about mine. I have a mixture of classical, hyper mobility, the way better end of vascular. To date I’ve had around 10 organ prolapses, digestive tract paralysis, bowel paralysis, bladder paralysis and a whole heap of other the stuff. Not to many people now about it and this month is all about bringing awareness. Some of us need a lot of medical support just to get through the the day. Other may need some Physio etc. it’s all individual and extremely complex. The best advice I can give you is to surround yourself with uplifting supporting people and getting a good medical team around you. I’m 54 and I manage most days but a lot is seen in public it’s all under my clothes and makeup and my love for people and life. Please do us all a favour and read what ever you can to help you understand!! #ehlersdanlossyndromeawareness #edsawareness #ehlersdanlossyndrome #dysmotility #intestinalfailure #gastroparesis #tubie #tubefed #ileostomy #ileostomyawareness #ostomy #ostomate #ostomylife #nevergiveup #believeinyourself #youvegotthis #family #faith #hope #love
  • Firstly - it’s the last day of May!!! How did that happen? It’s gone so fast but boy what a first 1/2 of the year the world has had!! It’s also #ehlersdanlosawareness month and this is the last day of the month. I had plans of doing fancy post and awesome examples etc but my body had other ideas. So here I am at Auckland hospital again. Ehlers danlos or Eds for short can be a devastating disorder. It’s in very basic terms a collagen disorder. It’s where the integrity of your collagen is affected and in terms that pretty much affects you whole entire body. There are more than several different types but today I’m just going to talk about mine. I have a mixture of classical, hyper mobility, the way better end of vascular. To date I’ve had around 10 organ prolapses, digestive tract paralysis, bowel paralysis, bladder paralysis and a whole heap of other the stuff. Not to many people now about it and this month is all about bringing awareness. Some of us need a lot of medical support just to get through the the day. Other may need some Physio etc. it’s all individual and extremely complex. The best advice I can give you is to surround yourself with uplifting supporting people and getting a good medical team around you. I’m 54 and I manage most days but a lot is seen in public it’s all under my clothes and makeup and my love for people and life. Please do us all a favour and read what ever you can to help you understand!! #ehlersdanlossyndromeawareness #edsawareness #ehlersdanlossyndrome #dysmotility #intestinalfailure #gastroparesis #tubie #tubefed #ileostomy #ileostomyawareness #ostomy #ostomate #ostomylife #nevergiveup #believeinyourself #youvegotthis #family #faith #hope #love

  •  54  6  31 May, 2020
  • This is a question I get asked a lot and my resounding answer is NO ⠀
⠀
Sure some people struggle with leaks especially at the beginning but truly once you find the right products for you and the right bag change routine for you, they should be incredibly rare ⠀
⠀
For me, I’ve had my ileostomy 11 months now and I’ve had 3 leaks although only 2 of them actually meant I got poo on me 🙈 2 of those leaks were completely my fault by leaving my bag on too long and the other was because I fell back asleep when I knew my bag needed emptied 😂🙈 so really they were all my fault 🤷🏻‍♀️⠀
⠀
I use Coloplast Sensura (not sensura mio) one piece convex bags and that’s it, I don’t personally need any rings, flange extenders or anything else ⠀
⠀
My routine is to remove the bag, clean the area well, dry it really well, heat the new bag up with a hairdryer before applying it and then I lie flat after for at least an hour with a heat pad on my abdomen to really help it stick. In the summer I don’t really need to lie flat afterwards as my skin is warmer ⠀
⠀
There are some things that increase the likelihood of leaks ⠀
⠀
💩 Your output consistency ⠀
⠀
If your output is really thin (like with an ileostomy) this can make leaks more likely. There are things you can do to thicken things are eat plenty carbohydrates and take medications if your doctor feels it’s appropriate⠀
⠀
💩 If you’re overweight⠀
⠀
If your bag can move a lot due to your abdomen shifting around or the bag can’t stick well due to the shape of your abdomen then this can cause leaks ⠀
⠀
Flange extenders can be helpful in reducing this as can convex bags and if you want to lose weight to reduce leaks then that’s an option too ⠀
⠀
💩 If you have saggy skin, your stoma sits in a fold or there’s scar tissue next to it ⠀
⠀
As the area will be less even due to these factors this will again impact how well the bag can stick ⠀
⠀
I would try out a variety of products including rings, paste, flange extenders etc ⠀
⠀
Personally my stoma sits in a dip from where I had an abscess but thankfully using convex bags has stopped that causing any issues 🙌🏼 ⠀
⠀
How often do you leak with your ostomy ?
  • This is a question I get asked a lot and my resounding answer is NO ⠀

    Sure some people struggle with leaks especially at the beginning but truly once you find the right products for you and the right bag change routine for you, they should be incredibly rare ⠀

    For me, I’ve had my ileostomy 11 months now and I’ve had 3 leaks although only 2 of them actually meant I got poo on me 🙈 2 of those leaks were completely my fault by leaving my bag on too long and the other was because I fell back asleep when I knew my bag needed emptied 😂🙈 so really they were all my fault 🤷🏻‍♀️⠀

    I use Coloplast Sensura (not sensura mio) one piece convex bags and that’s it, I don’t personally need any rings, flange extenders or anything else ⠀

    My routine is to remove the bag, clean the area well, dry it really well, heat the new bag up with a hairdryer before applying it and then I lie flat after for at least an hour with a heat pad on my abdomen to really help it stick. In the summer I don’t really need to lie flat afterwards as my skin is warmer ⠀

    There are some things that increase the likelihood of leaks ⠀

    💩 Your output consistency ⠀

    If your output is really thin (like with an ileostomy) this can make leaks more likely. There are things you can do to thicken things are eat plenty carbohydrates and take medications if your doctor feels it’s appropriate⠀

    💩 If you’re overweight⠀

    If your bag can move a lot due to your abdomen shifting around or the bag can’t stick well due to the shape of your abdomen then this can cause leaks ⠀

    Flange extenders can be helpful in reducing this as can convex bags and if you want to lose weight to reduce leaks then that’s an option too ⠀

    💩 If you have saggy skin, your stoma sits in a fold or there’s scar tissue next to it ⠀

    As the area will be less even due to these factors this will again impact how well the bag can stick ⠀

    I would try out a variety of products including rings, paste, flange extenders etc ⠀

    Personally my stoma sits in a dip from where I had an abscess but thankfully using convex bags has stopped that causing any issues 🙌🏼 ⠀

    How often do you leak with your ostomy ?

  •  41  5  30 May, 2020
  • Just me and my wound vac! My wound is making slow but good progress! I must say this vac is a pain!!! I have to keep myself plugged into the wall when I’m resting, it’s hot and itchy plastic glued to your butt, my skin is breaking down for the plastic and I get the cord caught on things 🤦🏻‍♀️. But, despite al that it’s helping me heal!! Thank you to my wonderful bf Mike who has been by my side throughout all this! The doctors are hoping to have it healed with the vac in a few months ❤️. Thank you for all your continued prayers ❤️❤️❤️
.
.
.
#ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy #barbiebutt #surgery #recovery
  • Just me and my wound vac! My wound is making slow but good progress! I must say this vac is a pain!!! I have to keep myself plugged into the wall when I’m resting, it’s hot and itchy plastic glued to your butt, my skin is breaking down for the plastic and I get the cord caught on things 🤦🏻‍♀️. But, despite al that it’s helping me heal!! Thank you to my wonderful bf Mike who has been by my side throughout all this! The doctors are hoping to have it healed with the vac in a few months ❤️. Thank you for all your continued prayers ❤️❤️❤️
    .
    .
    .
    #ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy #barbiebutt #surgery #recovery

  •  91  9  30 May, 2020
  • Bank holiday weekend lockdown style, in Costa del Dublin. It’s a gorgeous sunny and hot Saturday and my mums birthday. So we’re in the back garden having a nice drink together (Malibu and Coke for me). I of course being me banged my foot off the corner of the shower in my bathroom. So I’m sat outside with an ice pack to help 🤦🏻‍♀️🤦🏻‍♀️happy Saturday everyone and hope you’re all doing well. 
#crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy  #stomalife #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble  #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #bodyconfidence
  • Bank holiday weekend lockdown style, in Costa del Dublin. It’s a gorgeous sunny and hot Saturday and my mums birthday. So we’re in the back garden having a nice drink together (Malibu and Coke for me). I of course being me banged my foot off the corner of the shower in my bathroom. So I’m sat outside with an ice pack to help 🤦🏻‍♀️🤦🏻‍♀️happy Saturday everyone and hope you’re all doing well.
    #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
    #therealityofacrohnicillness #bodyconfidence

  •  58  14  30 May, 2020
  • And finally, I gained the courage to pull down the sheets and look at my stomach fresh after surgery. I remember thinking, “Okay that’s not so bad. I can live with this”— 𝒦𝓇𝒾𝓈𝓉𝒶 •
•This is exactly the words I told myself as I peaked down at my bagged belly for the first time after my ostomy surgery. This picture is from that exact moment. This is also the picture I sent to my husband to show him for the first time what my new belly looked like. I remember putting it in black and white because I was still embarrassed about having my poop exposed for everyone to see. 👀 •
•Is it just me or do you get all kinds of anxiety when it’s time to get a first look at your incision sight after surgery❓It’s always the first thing I ask about when I wake up in recovery. •
•𝗢𝘀𝘁𝗼𝗺𝗮𝘁𝗲𝘀; what were your thoughts when you first laid eyes on your ostomy after surgery? 🌹💭 •
•
•
•
•#baggedbelly #ostomy #ostomyawareness #ostomate #ileostomy #ileostomyawareness #mygutinstinct #galihealthambassador #galihealth #crohnsawareness #ibdawareness #ibdwarrior #crohnswarrior #spoonie #chronicillness #chronicpain #nocolonstillrollin #nocolonnoproblem #ostomyblogger #bodyrespect #bodypositivity #choosejoy
  • And finally, I gained the courage to pull down the sheets and look at my stomach fresh after surgery. I remember thinking, “Okay that’s not so bad. I can live with this”— 𝒦𝓇𝒾𝓈𝓉𝒶 •
    •This is exactly the words I told myself as I peaked down at my bagged belly for the first time after my ostomy surgery. This picture is from that exact moment. This is also the picture I sent to my husband to show him for the first time what my new belly looked like. I remember putting it in black and white because I was still embarrassed about having my poop exposed for everyone to see. 👀 •
    •Is it just me or do you get all kinds of anxiety when it’s time to get a first look at your incision sight after surgery❓It’s always the first thing I ask about when I wake up in recovery. •
    •𝗢𝘀𝘁𝗼𝗺𝗮𝘁𝗲𝘀; what were your thoughts when you first laid eyes on your ostomy after surgery? 🌹💭 •



    #baggedbelly #ostomy #ostomyawareness #ostomate #ileostomy #ileostomyawareness #mygutinstinct #galihealthambassador #galihealth #crohnsawareness #ibdawareness #ibdwarrior #crohnswarrior #spoonie #chronicillness #chronicpain #nocolonstillrollin #nocolonnoproblem #ostomyblogger #bodyrespect #bodypositivity #choosejoy

  •  248  33  29 May, 2020
  • The A team for any professional work place! Keep your staff safe with the power of our Nano-Silver Antimicrobial products! Protects via its AntiBacterial, Antifungal, Antimicrobial, keeps killing bad while leaving the good bugs alone! 🦠
  • The A team for any professional work place! Keep your staff safe with the power of our Nano-Silver Antimicrobial products! Protects via its AntiBacterial, Antifungal, Antimicrobial, keeps killing bad while leaving the good bugs alone! 🦠

  •  8  1  28 May, 2020
  • Yesterday I celebrated my 22nd birthday ! It was my first birthday since my surgery. First birthday with my bag and first ulcerative colitis free birthday! It was so special even though I didn’t go out to dinner or have a party with my family. I had a chance to really think back to past birthday’s and how sad they always were for me. I felt stuck like I knew I was one year older, but I was still sick and didn’t feel like I was ever going to get better. Yesterday I felt good all day and could eat whatever I wanted without fear of spending the whole day in the bathroom. I am forever grateful for my decision to have surgery almost a year ago. The pictures show me at my 18th birthday with my sweet boyfriend and then me yesterday at my 22nd. I was so sick at my 18th birthday and had lost so much weight. I could barely eat anything.  Life has really changed for me this past year and I realized how precious life is and I am finally enjoying it again. Never lose hope ❤️❤️ #ibdvisible #ileostomyawareness #strongwomen #worldibdday #ibdawareness #disabledandcute #spoonielife #rheumatoidarthritis #birthday #birthdaygirl #ulcerativecolitis #ulcerativecolitisfighter #ileostomybag #stoma #ileostomyawareness
  • Yesterday I celebrated my 22nd birthday ! It was my first birthday since my surgery. First birthday with my bag and first ulcerative colitis free birthday! It was so special even though I didn’t go out to dinner or have a party with my family. I had a chance to really think back to past birthday’s and how sad they always were for me. I felt stuck like I knew I was one year older, but I was still sick and didn’t feel like I was ever going to get better. Yesterday I felt good all day and could eat whatever I wanted without fear of spending the whole day in the bathroom. I am forever grateful for my decision to have surgery almost a year ago. The pictures show me at my 18th birthday with my sweet boyfriend and then me yesterday at my 22nd. I was so sick at my 18th birthday and had lost so much weight. I could barely eat anything. Life has really changed for me this past year and I realized how precious life is and I am finally enjoying it again. Never lose hope ❤️❤️ #ibdvisible #ileostomyawareness #strongwomen #worldibdday #ibdawareness #disabledandcute #spoonielife #rheumatoidarthritis #birthday #birthdaygirl #ulcerativecolitis #ulcerativecolitisfighter #ileostomybag #stoma #ileostomyawareness

  •  133  10  28 May, 2020
  • 🙌🏾🙌🏾🙌🏾
  • 🙌🏾🙌🏾🙌🏾

  •  7  1  28 May, 2020
  • EMBARRASSING OSTOMY STORY LOL 💩
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Before I found the ostomy supplies that worked for me I would have frequent leaks!
One time I went to my friends birthday dinner. I was fine on my way there but 1! I sweat easily 2! I sweat more worrying about if my ostomy will leak and 3! I sweat even more especially when I’m nervous being around a lot of people😂.
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So I’m at the dinner having a good old time eating and chatting. I look down and I see a orange looking stain on my shirt. I think I spilled food and then I realize it’s my ostomy leaking 😳
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I was so embarrassed that I didn’t know what to do so I just sat there hiding it. When everything was almost over then I told @fitwithjakk , I got up so embarrassed, said bye to my friends and just act like it wasn’t even there 😂😂
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Now I laugh about it but at the time I felt like it was never going to end! .
I wanna hear y’all ostomy leak stories! 💪🏾💪🏾💜
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#chronicillness #crohnsdisease #ileostomyawareness #ulcerativecolitis #ileostomy #colostomy #abs #crohnscolitis #ostomates #ostomy #bodypositivity @coloplast @coloplast.us
  • EMBARRASSING OSTOMY STORY LOL 💩
    .
    .
    Before I found the ostomy supplies that worked for me I would have frequent leaks!
    One time I went to my friends birthday dinner. I was fine on my way there but 1! I sweat easily 2! I sweat more worrying about if my ostomy will leak and 3! I sweat even more especially when I’m nervous being around a lot of people😂.
    .
    .
    So I’m at the dinner having a good old time eating and chatting. I look down and I see a orange looking stain on my shirt. I think I spilled food and then I realize it’s my ostomy leaking 😳
    .
    I was so embarrassed that I didn’t know what to do so I just sat there hiding it. When everything was almost over then I told @fitwithjakk , I got up so embarrassed, said bye to my friends and just act like it wasn’t even there 😂😂
    .
    Now I laugh about it but at the time I felt like it was never going to end! .
    I wanna hear y’all ostomy leak stories! 💪🏾💪🏾💜
    .
    .
    .
    #chronicillness #crohnsdisease #ileostomyawareness #ulcerativecolitis #ileostomy #colostomy #abs #crohnscolitis #ostomates #ostomy #bodypositivity @coloplast @coloplast.us

  •  169  20  28 May, 2020
  • I have had Crohns for a year and a half that has resulted in many hospitalizations and ER trips. I was having really bad pain and went to the ER in the middle of the night and was in screaming pain that they could not control. They realized my bowel had ruptured and on April 26th at 8:30 a.m. I had a surgeon sit down in front of me and tell me I would not make it if I didn’t have this surgery right now and it was a very high risk surgery due to my heart rate being 200 and a fever of 103. I am now almost 5 weeks post op and I can eat food without being in pain and no longer living off of protein shakes! This surgery left me with an ileostomy and a scar that goes down my entire abdomen BUT I feel like a completely different person. This bag saved my life. #crohnsawareness #ileostomyawareness 💜
  • I have had Crohns for a year and a half that has resulted in many hospitalizations and ER trips. I was having really bad pain and went to the ER in the middle of the night and was in screaming pain that they could not control. They realized my bowel had ruptured and on April 26th at 8:30 a.m. I had a surgeon sit down in front of me and tell me I would not make it if I didn’t have this surgery right now and it was a very high risk surgery due to my heart rate being 200 and a fever of 103. I am now almost 5 weeks post op and I can eat food without being in pain and no longer living off of protein shakes! This surgery left me with an ileostomy and a scar that goes down my entire abdomen BUT I feel like a completely different person. This bag saved my life. #crohnsawareness #ileostomyawareness 💜

  •  226  11  28 May, 2020
  • Reposted from @lisakateostomate 💜

Im sure I’m not alone with how I’m feeling. During this time at home, I’ve been trying my best to do exercise to help lose the last of the steroid weight(I’m not going mad, just walking round my garden for an hour). I gained a lot when I was on them last year and it knocked my confidence so much, I didn’t like how I looked. There’s days now almost a year on from being off them, i still struggle with parts of me I don’t like. But i need to be kinder to myself, I need to stop putting myself down and thinking I’m “fat” I’ve lost most of the extra steroid weight as I’m able to move about more now my arthritis is under control. I’m no where near the size I was year ago. Im able to fit back into some of my old clothes and some are too big on me now. I need to stop being so hard on myself and comparing myself to others. My body has been through so much and yes I have wobbly bits, stretch marks, cellulite, love handles and that’s ok. I need to love myself more and see myself how others see me. I am so grateful not only for my loved ones telling me I’m looking good when I can’t see it, but also to this community. Two ladies in particular come to mind, @natalie_amber1 whos a great body positivity advocate and @thebaglifeofbeck, her posts inspire me. They are inspirational women and great role models. They show the beauty of our bodies, that it’s ok to have scars, stretch marks etc. We need more people like them in the world, social media can be hard on both men and woman when it comes to body image. But it’s this community that made me feel good about myself in the past and have the confidence to post photos like this. I just need to get that back and also to accept my body as it is. I know it won’t happen over night. Ive loved my bag from day one as it’s given me my life back, I just need to love the rest of me.

#crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisible
  • Reposted from @lisakateostomate 💜

    Im sure I’m not alone with how I’m feeling. During this time at home, I’ve been trying my best to do exercise to help lose the last of the steroid weight(I’m not going mad, just walking round my garden for an hour). I gained a lot when I was on them last year and it knocked my confidence so much, I didn’t like how I looked. There’s days now almost a year on from being off them, i still struggle with parts of me I don’t like. But i need to be kinder to myself, I need to stop putting myself down and thinking I’m “fat” I’ve lost most of the extra steroid weight as I’m able to move about more now my arthritis is under control. I’m no where near the size I was year ago. Im able to fit back into some of my old clothes and some are too big on me now. I need to stop being so hard on myself and comparing myself to others. My body has been through so much and yes I have wobbly bits, stretch marks, cellulite, love handles and that’s ok. I need to love myself more and see myself how others see me. I am so grateful not only for my loved ones telling me I’m looking good when I can’t see it, but also to this community. Two ladies in particular come to mind, @natalie_amber1 whos a great body positivity advocate and @thebaglifeofbeck, her posts inspire me. They are inspirational women and great role models. They show the beauty of our bodies, that it’s ok to have scars, stretch marks etc. We need more people like them in the world, social media can be hard on both men and woman when it comes to body image. But it’s this community that made me feel good about myself in the past and have the confidence to post photos like this. I just need to get that back and also to accept my body as it is. I know it won’t happen over night. Ive loved my bag from day one as it’s given me my life back, I just need to love the rest of me.

    #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisible

  •  64  2  27 May, 2020
  • The sting-free Brava® Adhesive Remover enables you to remove your baseplate and leftover residue easily. It doesn’t contain alcohol, so it doesn’t sting or hurt the skin. It dries within seconds and does not affect further adhesion, leaving you ready to apply a new baseplate.
  • The sting-free Brava® Adhesive Remover enables you to remove your baseplate and leftover residue easily. It doesn’t contain alcohol, so it doesn’t sting or hurt the skin. It dries within seconds and does not affect further adhesion, leaving you ready to apply a new baseplate.

  •  15  1  27 May, 2020
  • Im sure I’m not alone with how I’m feeling. During this time at home, I’ve been trying my best to do exercise to help lose the last of the steroid weight(I’m not going mad, just walking round my garden for an hour). I gained a lot when I was on them last year and it knocked my confidence so much, I didn’t like how I looked. There’s days now almost a year on from being off them, i still struggle with parts of me I don’t like. But i need to be kinder to myself, I need to stop putting myself down and thinking I’m “fat” I’ve lost most of the extra steroid weight as I’m able to move about more now my arthritis is under control. I’m no where near the size I was year ago. Im able to fit back into some of my old clothes and some are too big on me now. I need to stop being so hard on myself and comparing myself to others. My body has been through so much and yes I have wobbly bits, stretch marks, cellulite, love handles and that’s ok. I need to love myself more and see myself how others see me. I am so grateful not only for my loved ones telling me I’m looking good when I can’t see it, but also to this community. Two ladies in particular come to mind, @natalie_amber1 whos a great body positivity advocate and @thebaglifeofbeck, her posts inspire me. They are inspirational women and great role models. They show the beauty of our bodies, that it’s ok to have scars, stretch marks etc. We need more people like them in the world, social media can be hard on both men and woman when it comes to body image. But it’s this community that made me feel good about myself in the past and have the confidence to post photos like this. I just need to get that back and also to accept my body as it is. I know it won’t happen over night. Ive loved my bag from day one as it’s given me my life back, I just need to love the rest of me. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble 
#therealityofacrohnicillness #bodyconfidence
  • Im sure I’m not alone with how I’m feeling. During this time at home, I’ve been trying my best to do exercise to help lose the last of the steroid weight(I’m not going mad, just walking round my garden for an hour). I gained a lot when I was on them last year and it knocked my confidence so much, I didn’t like how I looked. There’s days now almost a year on from being off them, i still struggle with parts of me I don’t like. But i need to be kinder to myself, I need to stop putting myself down and thinking I’m “fat” I’ve lost most of the extra steroid weight as I’m able to move about more now my arthritis is under control. I’m no where near the size I was year ago. Im able to fit back into some of my old clothes and some are too big on me now. I need to stop being so hard on myself and comparing myself to others. My body has been through so much and yes I have wobbly bits, stretch marks, cellulite, love handles and that’s ok. I need to love myself more and see myself how others see me. I am so grateful not only for my loved ones telling me I’m looking good when I can’t see it, but also to this community. Two ladies in particular come to mind, @natalie_amber1 whos a great body positivity advocate and @thebaglifeofbeck, her posts inspire me. They are inspirational women and great role models. They show the beauty of our bodies, that it’s ok to have scars, stretch marks etc. We need more people like them in the world, social media can be hard on both men and woman when it comes to body image. But it’s this community that made me feel good about myself in the past and have the confidence to post photos like this. I just need to get that back and also to accept my body as it is. I know it won’t happen over night. Ive loved my bag from day one as it’s given me my life back, I just need to love the rest of me. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble
    #therealityofacrohnicillness #bodyconfidence

  •  60  17  26 May, 2020
  • Let’s talk about 𝘱𝘩𝘢𝘯𝘵𝘰𝘮 𝘳𝘦𝘤𝘵𝘶𝘮. 👻 Yup, that’s a thing when you have an ostomy. Let me explain. ⬇️
•
•Even though my rectum is no longer functioning because I have an ostomy, at times, I still get the sensations of having to go to the bathroom. 💩 Weird I know.Sometimes it’s because I actually have to pass mucus rectally (Sorry TMI 🙈) but other times, it’s a phantom poop where I literally just sit on the toilet until the feeling eventually passes. •
•
•I remember a couple months after surgery I was at the drugstore picking out a card and I had the sudden urge to go to the bathroom. I went into full panic mode like I would have before my ostomy. I was pacing the aisle, I was sweating and trying to take deep breaths. I literally had to convince myself that it was not possible for me to have an accident of having 💩 run down my leg anymore. I think I ended up leaving without a card anyway and drive home to only find the feeling had dissipated. Of course 🤦🏼‍♀️
•
• I had read about these things before surgery but didn’t know how 𝗿𝗲𝗮𝗹 it would really be. I’ve read that phantom rectum is somewhat compared to when someone loses a limb and still get tingling sensations of where there limb once was.🤯 The human body never ceases to amaze me! •
•𝕆𝕤𝕥𝕠𝕞𝕒𝕥𝕖𝕤; have you had a similar phantom poop experience after surgery like I did? Share with me below 💓
•
•
•
•
•
•#galihealthambassador #galihealth #galihealthfam #crohnsawareness #ibdawareness #ostomate #ostomyawareness #ostomy #ileostomy #ileostomyawareness #phantomrectum #invisibleillness #invisibledisability #spoonie #baglady #ostomyblogger
  • Let’s talk about 𝘱𝘩𝘢𝘯𝘵𝘰𝘮 𝘳𝘦𝘤𝘵𝘶𝘮. 👻 Yup, that’s a thing when you have an ostomy. Let me explain. ⬇️

    •Even though my rectum is no longer functioning because I have an ostomy, at times, I still get the sensations of having to go to the bathroom. 💩 Weird I know.Sometimes it’s because I actually have to pass mucus rectally (Sorry TMI 🙈) but other times, it’s a phantom poop where I literally just sit on the toilet until the feeling eventually passes. •

    •I remember a couple months after surgery I was at the drugstore picking out a card and I had the sudden urge to go to the bathroom. I went into full panic mode like I would have before my ostomy. I was pacing the aisle, I was sweating and trying to take deep breaths. I literally had to convince myself that it was not possible for me to have an accident of having 💩 run down my leg anymore. I think I ended up leaving without a card anyway and drive home to only find the feeling had dissipated. Of course 🤦🏼‍♀️

    • I had read about these things before surgery but didn’t know how 𝗿𝗲𝗮𝗹 it would really be. I’ve read that phantom rectum is somewhat compared to when someone loses a limb and still get tingling sensations of where there limb once was.🤯 The human body never ceases to amaze me! •
    •𝕆𝕤𝕥𝕠𝕞𝕒𝕥𝕖𝕤; have you had a similar phantom poop experience after surgery like I did? Share with me below 💓





    #galihealthambassador #galihealth #galihealthfam #crohnsawareness #ibdawareness #ostomate #ostomyawareness #ostomy #ileostomy #ileostomyawareness #phantomrectum #invisibleillness #invisibledisability #spoonie #baglady #ostomyblogger

  •  230  20  26 May, 2020
  • Haven’t updated you guys in months.. but this past school year I became Cheer CAPTAIN! Unfortunately our big performance got cancelled due to COVID-19. But we had fun practicing. It was a lot of hard work, but success for my ostomy! No accidents! I was a flyer so I was the one they throw up in the air and catch. With all the hands handling me, not once did anyone ever knock my bag off or even know I had a bag. I would make sure to empty before practice, wear a band around my stomach and was good to go! Glad to say I never landed on the ground, but did get some black and blues from people holding me so tightly. Lol .
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#ostomy #ostomyfitness #ostomyawareness #ostomylife #ostomybag #cheeringwithanostomy
#ostomycheerleader
#ileostomy #ileostomygirl #ileostomybag #ileostomylife #ileostomyawareness #ileostomyfitness #ileostomyqueenwarrior #crohnsdisease #crohnswarrior #crohnscheerleader
  • Haven’t updated you guys in months.. but this past school year I became Cheer CAPTAIN! Unfortunately our big performance got cancelled due to COVID-19. But we had fun practicing. It was a lot of hard work, but success for my ostomy! No accidents! I was a flyer so I was the one they throw up in the air and catch. With all the hands handling me, not once did anyone ever knock my bag off or even know I had a bag. I would make sure to empty before practice, wear a band around my stomach and was good to go! Glad to say I never landed on the ground, but did get some black and blues from people holding me so tightly. Lol .
    .
    .
    #ostomy #ostomyfitness #ostomyawareness #ostomylife #ostomybag #cheeringwithanostomy
    #ostomycheerleader
    #ileostomy #ileostomygirl #ileostomybag #ileostomylife #ileostomyawareness #ileostomyfitness #ileostomyqueenwarrior #crohnsdisease #crohnswarrior #crohnscheerleader

  •  59  4  25 May, 2020
  • Lockdown boredom is real🤦🏻‍♀️worked out today and feel like crap. Due my stelara injection next week so I’m running on empty, I need my magic juice again. Pretty impressed with how l can go the full 8 weeks without not feeling too bad. When I was on vedo and infliximab I had to be given those 4 weekly. Sun is shining thankfully so that always helps my mood. How cool is this filter? @cozziecorinne the cat woman filter is on Snapchat. You should try it. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy  #stomalife #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble  #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #bodyconfidence
  • Lockdown boredom is real🤦🏻‍♀️worked out today and feel like crap. Due my stelara injection next week so I’m running on empty, I need my magic juice again. Pretty impressed with how l can go the full 8 weeks without not feeling too bad. When I was on vedo and infliximab I had to be given those 4 weekly. Sun is shining thankfully so that always helps my mood. How cool is this filter? @cozziecorinne the cat woman filter is on Snapchat. You should try it. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
    #therealityofacrohnicillness #bodyconfidence

  •  35  2  25 May, 2020

Top #ileostomyawareness Posts

  • This was posted on a Facebook group I'm in and shows how an ileostomy is formed.

It's easy to understand why we are told to chew, chew, and chew again to prevent blockages, when the small intestine is folded back on itself making the hole smaller for food/waste to get through.

Great way of explaining an #ileostomy to someone. I understand a #colostomy is formed in the same way.

#postoprecovery #postopupdate #postsurgery #barbiebuttclub #barbie #ulcerativecolitis #inflammatoryboweldisease #IBDvisible #crohnsandcolitisawareness #ileostomyawareness #stoma #Ostomate #permanentileostomy #permanentstoma #bumonmytum #nocolonstillrollin #butyoudontlooksick #sickbutinvisible #spoonie #chronicillness #noteverydisabilityisvisible #science #stomascience #lovetolearn #stomaeducation #learningaboutstomas
  • This was posted on a Facebook group I'm in and shows how an ileostomy is formed.

    It's easy to understand why we are told to chew, chew, and chew again to prevent blockages, when the small intestine is folded back on itself making the hole smaller for food/waste to get through.

    Great way of explaining an #ileostomy to someone. I understand a #colostomy is formed in the same way.

    #postoprecovery #postopupdate #postsurgery #barbiebuttclub #barbie #ulcerativecolitis #inflammatoryboweldisease #IBDvisible #crohnsandcolitisawareness #ileostomyawareness #stoma #Ostomate #permanentileostomy #permanentstoma #bumonmytum #nocolonstillrollin #butyoudontlooksick #sickbutinvisible #spoonie #chronicillness #noteverydisabilityisvisible #science #stomascience #lovetolearn #stomaeducation #learningaboutstomas

  •  164  14  14 January, 2020
  • Merry Christmas Eve everyone!Carson is still here in the hospital. The drs have decided that at some point this morning they are going to do an upper GI. We are praying for some answers, fast healing both physical and emotional and that we get to go home tonight and sleep in our own beds and snuggle baby bro! Thank you everyone for the continued prayers and words of encouragement. We are so very blessed with amazing people from all of the world and we pray for you all also and hope everyone is having a great holiday season. Sometimes God has plans for us we don’t understand and right now this is one of those for this boy, but I know in my heart it will only make Carson stronger and more companionate. #ehlersdanlossyndrome #ehlersdanlosawareness #ileostomy #ileostomylife #ileostomyawareness #ostomy #ostomyawareness #ostomylife #ostomyboy #silentillness #chronicillness #chronicpain #theworldisyours
  • Merry Christmas Eve everyone!Carson is still here in the hospital. The drs have decided that at some point this morning they are going to do an upper GI. We are praying for some answers, fast healing both physical and emotional and that we get to go home tonight and sleep in our own beds and snuggle baby bro! Thank you everyone for the continued prayers and words of encouragement. We are so very blessed with amazing people from all of the world and we pray for you all also and hope everyone is having a great holiday season. Sometimes God has plans for us we don’t understand and right now this is one of those for this boy, but I know in my heart it will only make Carson stronger and more companionate. #ehlersdanlossyndrome #ehlersdanlosawareness #ileostomy #ileostomylife #ileostomyawareness #ostomy #ostomyawareness #ostomylife #ostomyboy #silentillness #chronicillness #chronicpain #theworldisyours

  •  146  18  24 December, 2019
  • This picture right here makes me cry as I type this out. God is so incredibly good! Carson is up and getting to drink some Gatorade and now eat a yogurt. Drs still aren’t 100% sure what is going on and still plan on a few more test. Carson is such a fighter and looking at this picture you wouldn’t know that just yesterday he was not responding, he had no color and his face was sunk in. Yesterday was a dark scary day and today the sun is shining and my boy is smiling. I believe in the power of prayer and we felt and saw Gods hands at work yesterday. All of the Drs, nurses and staff have been amazing! Thank you everyone for all of your love, calls, texts, videos, visits and thoughts and prayers. Carson is such a fighter and he won’t let  this stop him that’s for sure. #silentillness #ehlersdanlossyndrome #ehlersdanlosawareness #ileostomy #ileostomylife #ileostomyawareness #ostomy #ostomylife #ostomyawareness #ostomybag #theworldisyours #ostomyboy #chronicillness #chronicpain #wonderboy #momofboys
  • This picture right here makes me cry as I type this out. God is so incredibly good! Carson is up and getting to drink some Gatorade and now eat a yogurt. Drs still aren’t 100% sure what is going on and still plan on a few more test. Carson is such a fighter and looking at this picture you wouldn’t know that just yesterday he was not responding, he had no color and his face was sunk in. Yesterday was a dark scary day and today the sun is shining and my boy is smiling. I believe in the power of prayer and we felt and saw Gods hands at work yesterday. All of the Drs, nurses and staff have been amazing! Thank you everyone for all of your love, calls, texts, videos, visits and thoughts and prayers. Carson is such a fighter and he won’t let this stop him that’s for sure. #silentillness #ehlersdanlossyndrome #ehlersdanlosawareness #ileostomy #ileostomylife #ileostomyawareness #ostomy #ostomylife #ostomyawareness #ostomybag #theworldisyours #ostomyboy #chronicillness #chronicpain #wonderboy #momofboys

  •  147  23  5 December, 2019
  • Thank you so much for your support @chronicallytravelled 💕💕💕 Original Caption:

Look what was in the post yesterday🥰😚⁣
⁣
So in love with my super comfy @freefromthreads LIFE TAKES GUTS hoodie. Not only does this spread awareness for @crohnsandcolitisuk but 10% of profits go to a charity 💜

I love that I’ll be able to wear this and easily start an open conversation about living with Ulcerative Colitis. ⁣
⁣
One of their products will be available in our raffle at the IBD Poo Party 💩 so go check them out! ⁣
⁣
Also shoutout to @emilyallwright.makeuplashes for making my lashes super fab today 💜
  • Thank you so much for your support @chronicallytravelled 💕💕💕 Original Caption:

    Look what was in the post yesterday🥰😚⁣

    So in love with my super comfy @freefromthreads LIFE TAKES GUTS hoodie. Not only does this spread awareness for @crohnsandcolitisuk but 10% of profits go to a charity 💜

    I love that I’ll be able to wear this and easily start an open conversation about living with Ulcerative Colitis. ⁣

    One of their products will be available in our raffle at the IBD Poo Party 💩 so go check them out! ⁣

    Also shoutout to @emilyallwright.makeuplashes for making my lashes super fab today 💜

  •  147  21  20 January, 2020
  • There are days that I wake up with no energy and pain that some can’t even imagine (like the last few days). There are days where I don’t understand what’s going on. Whether the day is good, bad or ugly my smile will always remain! Remember, it could always be worse so be thankful for LIFE! 📷 @_asiamariah 👗 @sheinofficial @shein_us 
#motivationmonday #life #behappy #love #blackgirlmagic #blackgirljoy #blackgirlsrock #melanin #fashion #ostomy #ostomyfashion #ostomybag #ostomylife #ostomyawareness #ostomyblogger #ostomyadvocate #ileostomy #ileostomybag #ileostomylife #ileostomygirl #ileostomyawareness #ileostomyblogger #shithappens #sirpoopalot #nowthis
  • There are days that I wake up with no energy and pain that some can’t even imagine (like the last few days). There are days where I don’t understand what’s going on. Whether the day is good, bad or ugly my smile will always remain! Remember, it could always be worse so be thankful for LIFE! 📷 @_asiamariah 👗 @sheinofficial @shein_us
    #motivationmonday #life #behappy #love #blackgirlmagic #blackgirljoy #blackgirlsrock #melanin #fashion #ostomy #ostomyfashion #ostomybag #ostomylife #ostomyawareness #ostomyblogger #ostomyadvocate #ileostomy #ileostomybag #ileostomylife #ileostomygirl #ileostomyawareness #ileostomyblogger #shithappens #sirpoopalot #nowthis

  •  130  8  27 August, 2018
  • 💜 #ibdawarenessweek 💜

Raising awareness about ibd has an important knock on effect, reducing the stigma about taking about illness, bowls, poo, stoma bags, invisible illnesses abnd the symptoms so many people with IBD face.

One of the things we've focused a lot on in the past year is to #endstomastigma. A stoma bag is a real prospect for someone with IBD, and others have permanent or temporary stomas. Whilst a stoma comes with its own problems, it actually helps to relieve several of the symptoms of ibd.

IBD isn't IBS. When confronted with the fact that someone has IBD, it's easy for others to assume that they just get a bad stomach, have diarrhea or stomach cramps. It's easy to assume that people will 'be better' after they come back to work from some time off, or that if someone isn't experiencing a flare then they're 'okay' or 'well'. IBD can affect the eyes and joints, cause anaemia, bloody stools, malnutrition , fatigue, brain fog, fever, loss of appetite and significant weight loss, severe dehydration, fistulas and many other problems. 
So whilst we're fighting to #endstomastigma, we also want to raise the visibility of ibd and the myriad problems those suffering from it face. 💜 #invisibleillness #invisibleillnessawareness #ibdwarrior #ibdawareness 💜

Image @thailaskye ✨
  • 💜 #ibdawarenessweek 💜

    Raising awareness about ibd has an important knock on effect, reducing the stigma about taking about illness, bowls, poo, stoma bags, invisible illnesses abnd the symptoms so many people with IBD face.

    One of the things we've focused a lot on in the past year is to #endstomastigma. A stoma bag is a real prospect for someone with IBD, and others have permanent or temporary stomas. Whilst a stoma comes with its own problems, it actually helps to relieve several of the symptoms of ibd.

    IBD isn't IBS. When confronted with the fact that someone has IBD, it's easy for others to assume that they just get a bad stomach, have diarrhea or stomach cramps. It's easy to assume that people will 'be better' after they come back to work from some time off, or that if someone isn't experiencing a flare then they're 'okay' or 'well'. IBD can affect the eyes and joints, cause anaemia, bloody stools, malnutrition , fatigue, brain fog, fever, loss of appetite and significant weight loss, severe dehydration, fistulas and many other problems.
    So whilst we're fighting to #endstomastigma, we also want to raise the visibility of ibd and the myriad problems those suffering from it face. 💜 #invisibleillness #invisibleillnessawareness #ibdwarrior #ibdawareness 💜

    Image @thailaskye

  •  147  7  4 December, 2019